She wrote on Instagram: ‘A very famous doctor called me the other day to tell me that a relative of his had just been diagnosed with Alzheimer’s at a young age.
‘And they have three children, ages 10, 12 and 14, and he needs all my resources, any contacts. And I was like, ‘What?’
Emma continued: ‘And I have contacts and nothing makes me happier than being able to be helpful and support the next carer, which I was happy to do.’
‘It just blows my mind why our doctors don’t already have a list of ways to support carers?’ – the mum-of-two asked her followers.
‘Another thing that really upsets me is when I get messages from families whose members have just been diagnosed with frontal temporal dementia or some other type of dementia and they ask me for resources’.
Earlier this month, Bruce’s wife Emma shared a shocking call she received from a ‘very famous doctor’ while caring for a retired actor battling dementia. It happened in 2024 in New York City
‘I’m not even in the same state as them, in the same city. It’s very difficult to pass on those resources, unless it’s to the Frontal Temporal Dementia Association or something like that.’
Heming added: ‘But that’s like saying they need to do a better job. Doctors need to do a better job. Doctors do need a roadmap, just a little bit of support.’
She also shared a video on Instagram last month to celebrate National Carers’ Day.
Last October, Emma opened up about his struggle with dementia and said she doesn’t ‘hide’ the diagnosis from her daughters.
During an interview for Town & Country Magazine, Heming explained: ‘This disease is misdiagnosed, it’s overlooked, it’s misunderstood.
‘So finally getting diagnosed was key so I could find out what frontal temporal dementia is and tell our children about it.’
Emma added: ‘I’ve never tried to sugarcoat the situation for them. They’re used to Bruce fading over the years. I’m not trying to shield them from that.’
Last October, Emma opened up about his struggle with dementia and said she was not ‘hiding’ the diagnosis from her daughters
Emma said she would not let ‘Tourette’s syndrome ruin our whole family. Bruce wouldn’t want that,’ adding that she hopes to help “the next family”.
‘I learnt from our therapist that if children ask questions, it means they are ready to know the answer. If we saw that Bruce was having a hard time, I would talk to the kids about it so they would understand, but this is a chronic, progressive and incurable disease.’
Heming told the publication that their children typically ‘don’t discuss the ultimate side of it with them, and they didn’t ask.’
Rumer Willis celebrates her birthday with Bruce Willis and Demi Moore
However, she said Mabel and Evelyn ‘know that Daddy’s not going to get better’.
Emma said she wouldn’t let ‘Tourette’s Syndrome’ ruin our whole family. Bruce wouldn’t want that,’ and added that she hopes to help “the next family”.
Last February, Demi Moore spoke emotionally about Bruce during an interview with Variety.
Rumer Willis gives an update on her father Bruce Willis
The Golden Globe winner told the publication, ‘We’ll always be a family, just in a different form.
‘It’s never been a question for me. I show up because that’s what you do for the people you love,’ Moore added.
She then explained, ‘I hope it inspires others to see that there’s another way to do the right thing. Life after divorce goes on. There is a way to raise children together with love.’